LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect

NOTE: Since the meeting is intended for those living in Texas/Oklahoma/Arkansas/Louisiana, this virtual meeting is set in Central Time. This call for those living in Texas, Oklahoma, Arkansas, and Louisiana with an interest in LHON takes place quarterly on second Monday of each month at 6:00pm CST. Host Donna Basse facilitates this call. Consider joining […]

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

Dads of LHON-Affected “Kids of All Ages”

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place bimonthly on the third Wednesday of each month at 8:00pm EST/5:00pm PST.  If you're a dad of someone affected by LHON, consider joining the […]

Dads of LHON-Affected “Kids of All Ages”

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place bimonthly on the third Wednesday of each month at 8:00pm EST/5:00pm PST.  If you're a dad of someone affected by LHON, consider joining the […]

Event Series Western New York Support Meeting

Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]

LHON – New York, New Jersey, Pennsylvania Connect

Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]