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  • LHON Southeast Connect

    LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • LHON Midwest Connect

    LHON Midwest Connect

    This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]

  • Dads of LHON – Affected “Kids of All Ages”

    Dads of LHON – Affected “Kids of All Ages”

    The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out […]

  • LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • Northeast PA Support Meeting

    Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

  • Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]