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  • Mitochondrial Replacement Therapy Bench-to-Bedside Seminar

    Virtual Event

    OPEN TO ALL UMDF Bench-to-Bedside Seminar Mitochondrial Replacement Therapy (MRT): Shared Experiences from the UK & Australia and Implications in the US ​​​​​​ Friday, Sept. 5 at 10:00 am ET Last month, researchers in the United Kingdom published two papers sharing promising results from eight births utilizing mitochondrial replacement therapy, a fertility technique that helps prevent […]

  • TK2d Tuesday

    Join UMDF as we mark TK2d Tuesday. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease caused by inherited mutations in TK2, a nuclear gene responsible for making a […]

  • Support Group for All

    Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • LHON Awareness Day

    Join UMDF as we mark Leber hereditary optic neuropathy day!  Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. […]