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Event Series LHON – New York, New Jersey, Pennsylvania Connect

LHON – New York, New Jersey, Pennsylvania Connect

This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Hosts Jim and Mary Tolve facilitate this call. Reach out to Jim Tolve at jetragnar@gmail.com with any questions. There's also a Facebook group for those in New York […]

Event Series LHON Assistive Technology

LHON Assistive Technology

This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]

UMDF Mitochondrial Medicine 2024 in Cleveland, Ohio

Hilton Downtown Cleveland 100 Lakeside Ave E, Cleveland, OH 44114, OH, United States

Join us in Charlotte, North Carolina, as we bring together the best minds in mitochondrial medicine and the patients we serve.

Event Series LHON DC-Area Connect

LHON DC-Area Connect

This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's also a Facebook group for those in the DC-Area located at this link: https://www.facebook.com/groups/243446586122096 Join Details: One option is to use […]

LHON Live! Monthly Call

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ Reach out to Jessica Loomer […]

Event Series Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]