World Mitochondrial Disease Awareness Week
Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that increased awareness, attention, and funds will move the needle toward […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
LHON Awareness Day
Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. Learn more at https://www.umdf.org/LHON.
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]
LHON – New York, New Jersey, Pennsylvania Connect
This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Hosts Jim and Mary Tolve facilitate this call. Reach out to Jim Tolve at jetragnar@gmail.com with any questions. There's also a Facebook group for those in New York […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Energy for Life Walk – Detroit
Rotary Park Six Mile Road & Hubbard Street, Livonia, MI, United StatesENERGY FOR LIFE WALK DETROIT SEPTEMBER 21, 2024 LOCATION Rotary Park - Pavilions 3 & 4 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Southern Wisconsin
Fox Brook Park 2925 N Barker Rd, Brookfield, WIENERGY FOR LIFE WALK SO. WISCONSIN SEPTEMBER 21, 2024 LOCATION Fox Brook Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Columbus
Wolfe Park Shelter House 105 Park Drive, Columbus, OhioENERGY FOR LIFE WALK COLUMBUS SEPTEMBER 21, 2024 LOCATION Wolfe Park Shelterhouse SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 9:45 AM CONTACT Angela Sommer - 412-744-1066
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]