Events
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
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Mitochondrial Replacement Therapy Bench-to-Bedside Seminar
Virtual EventOPEN TO ALL UMDF Bench-to-Bedside Seminar Mitochondrial Replacement Therapy (MRT): Shared Experiences from the UK & Australia and Implications in the US Friday, Sept. 5 at 10:00 am ET Last month, researchers in the United Kingdom published two papers sharing promising results from eight births utilizing mitochondrial replacement therapy, a fertility technique that helps prevent […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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TK2d Tuesday
Join UMDF as we mark TK2d Tuesday. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease caused by inherited mutations in TK2, a nuclear gene responsible for making a […]
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Support Group for All
When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
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UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito
Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.
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Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)
Virtual EventSubmit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.
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LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]
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LHON Awareness Day
Join UMDF as we mark Leber hereditary optic neuropathy day! Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. The typical onset pattern is for one eye to become affected, then the other eye to begin losing vision within a few weeks or months; […]