PDCD FDA Listening Session Report Now Available
On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug...
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Mitochondrial Medicine Society Issues Health Guidance for this Winter
COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read: Mitochondrial Medicine Society Issues Health Guidance for this WinterFundraising Highlight: Logan Sloane Aronson Research Fund for Mitochondrial Disease in Honor of Sydney Breslow
The Logan Sloane Aronson Research Fund in honor of Sydney Breslow Sydney Breslow was diagnosed with an unspecified mitochondrial disorder when...
Read: Fundraising Highlight: Logan Sloane Aronson Research Fund for Mitochondrial Disease in Honor of Sydney BreslowPowerhouse Podcast #26: Cousins for a Cure 2023
Powerhouse Podcast #26: Cousins for a Cure 2023 Check out the Powerhouse Podcast playlist on YouTube...
Read: Powerhouse Podcast #26: Cousins for a Cure 2023Ask the Mito Doc – November 2023; Q&A
Ask the Mito Doc November 2023 Coffee and Conversations – Four Breakout Room Sessions DOWNLOAD the Coffee and Conversations Resources...
Read: Ask the Mito Doc – November 2023; Q&AAdvocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read: Advocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New RuleResearch Update from 2019 accelerators winner Arwen Gao, PhD
In 2019, accelerators project donors helped the mito community make history at the first ever Big Pitch event at the UMDF Symposium on...
Read: Research Update from 2019 accelerators winner Arwen Gao, PhDMito Study Roundup: Studies Available for Patients, Caregivers
Mito Study & Survey Roundup Updated 8/22/26 We all want more and better therapies for mitochondrial disease, and to achieve this goal we...
Read: Mito Study Roundup: Studies Available for Patients, CaregiversPowerhouse Podcast #25: Carole Mac
Powerhouse Podcast #25: Carole Mac On National Author’s Day, we’re bringing you children’s book author, Carole Mac, on a...
Read: Powerhouse Podcast #25: Carole MacLanguage Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
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