Meet Jeremiah
Like many parents, Aneesa’s introduction to mitochondrial disease was jarring. After months of jumping from specialist to specialist who ran...
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Powerhouse Podcast #27: Heather Gatcombe, MD
Powerhouse Podcast #27: Heather Gatcombe, MD On this special episode of the Powerhouse Podcast, we’re honored to host Heart Mom and Mito...
Read moreMitochondrial Medicine 2023: Rethink Medicaid: Government Programs & Medicaid Waivers
DOWNLOAD Stacy and Jenny’s Slides (pdf) >> DOWNLOAD the Medicaid Glossary of Terms (pdf) >> Due to technical issues with the...
Read moreAdvocacy Update – February 2024: Redefining “Rare” For the World, Funding for 2024 & Beyond
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read moreUMDF Family Impact Funds Award $200k Grant to CHOP to Explore Potential Single Large-Scale mtDNA Deletion Syndrome Treatments
The United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new grant of $200,000 awarded to Suraiya Haroon, PhD, within...
Read moreAsk the Mito Doc – February 2024; Q&A
Ask the Mito Doc – February 2024 Q&A All answers today are based on personal experience of the participants. As always, please...
Read moreAdvocacy Update – January 2024: New FDA Guidance Encouraging Sign for Rare Disease Patients
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read moreAsk the Mito Doc – January 2024; Q&A
Ask the Mito Doc – January 2024 Q&A All answers today are based on personal experience of the participants. As always, please...
Read moreAsk the Mito Doc – December 2023; Q&A
Ask the Mito Doc – December 2023 Q&A Wrapping Up 2023 with the Mito Docs Clinicians: Dr. Amy Goldstein, MD, Children’s...
Read moreAdvocacy Update – December 2023
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
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