Meet Chaz Davis: Living With LHON
“It was that sense of accomplishment that has carried me to where I am today.” Charles ‘Chaz’ Davis remembers March 3, 2013 vividly. The...
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Meet Joe McCormick, Jr.
In honor of National Blindness Awareness Month, we feature LHON patient Joe McCormick. Joe was looking toward a bright future. While in high...
Read moreMinovia Moves Fast Towards Treatment For Pearson Syndrome
UMDF’s Mitochondrial Medical Symposium has become the place where news breaks on the latest potential treatments and clinical trials. In 2019,...
Read morePutting Mitochondrial Disease Down for the Count
Every Wednesday night, you will find eight year old Harper Johnson in her seat at the Davis Arena in Louisville, KY. While she loves dance and...
Read moreThey’ve Been Walking for 20 Years
Lora Lacey was in her senior year of high school when she suffered a viral infection that affected her muscles. At the time, her mitochondrial...
Read moreChance Meeting Leads Patient To First Symposium
It was a chance online search about Kearns-Sayre Syndrome (KSS) that led Rachel Godshall to her first ever trip to a UMDF Symposium, ...
Read moreDonors Make History for accelerators Project
accelerators project donors helped our community make history after the Big Pitch event at Mitochondrial Medicine 2019. The excitement began...
Read moreFour Months — Many Miles for Mito!
For many runners, one major marathon or trail race is a once in a lifetime event. Michael and Amy Hall are not just any runners. This year,...
Read moreMeet the Atkins
Our beloved sons, Michael and Joshua Atkins, were born in the 1970’s, and died in 2011 and 2017 respectively, having been diagnosed in 1999...
Read moreExtended Ag Services has been with us since the start
It’s been 10 years since walkers gathered to join in the UMDF’s first Energy for Life Walk in Minnesota. From the very beginning, there has...
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