Meet Joe McCormick, Jr.
In honor of National Blindness Awareness Month, we feature LHON patient Joe McCormick. Joe was looking toward a bright future. While in high...
Read: Meet Joe McCormick, Jr.Latest News
Minovia Moves Fast Towards Treatment For Pearson Syndrome
UMDF’s Mitochondrial Medical Symposium has become the place where news breaks on the latest potential treatments and clinical trials. In 2019,...
Read: Minovia Moves Fast Towards Treatment For Pearson SyndromePutting Mitochondrial Disease Down for the Count
Every Wednesday night, you will find eight year old Harper Johnson in her seat at the Davis Arena in Louisville, KY. While she loves dance and...
Read: Putting Mitochondrial Disease Down for the CountThey’ve Been Walking for 20 Years
Lora Lacey was in her senior year of high school when she suffered a viral infection that affected her muscles. At the time, her mitochondrial...
Read: They’ve Been Walking for 20 YearsChance Meeting Leads Patient To First Symposium
It was a chance online search about Kearns-Sayre Syndrome (KSS) that led Rachel Godshall to her first ever trip to a UMDF Symposium, ...
Read: Chance Meeting Leads Patient To First SymposiumDonors Make History for accelerators Project
accelerators project donors helped our community make history after the Big Pitch event at Mitochondrial Medicine 2019. The excitement began...
Read: Donors Make History for accelerators ProjectFour Months — Many Miles for Mito!
For many runners, one major marathon or trail race is a once in a lifetime event. Michael and Amy Hall are not just any runners. This year,...
Read: Four Months — Many Miles for Mito!Meet the Atkins
Our beloved sons, Michael and Joshua Atkins, were born in the 1970’s, and died in 2011 and 2017 respectively, having been diagnosed in 1999...
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It’s been 10 years since walkers gathered to join in the UMDF’s first Energy for Life Walk in Minnesota. From the very beginning, there has...
Read: Extended Ag Services has been with us since the startChange Is Constant for Hayley Leib
Like most mitochondrial disease patients, change is constant for Hayley from the moment she opens her eyes in the morning. “I never know how I...
Read: Change Is Constant for Hayley Leib