This coming week, September 16 – 22, 2024, marks World Mitochondrial Disease Week. For me, the week is deeply personal. This year marks twenty...
Read: A special message from UMDF for World Mitochondrial Disease Week 2024Powerhouse Podcast #32: Mito Moms for World Mitochondrial Disease Awareness Week The latest episode of the Powerhouse Podcast is all about...
Read: Powerhouse Podcast #32: Mito Moms for World Mitochondrial Disease Awareness WeekIn a few weeks, we’ll join other mitochondrial disease-focused patient advocacy groups across the globe in marking World Mitochondrial Disease...
Read: Advocacy Update – Aug 2024: Help Shape the Legislative Landscape for the Mito Community Through Survey, UMDF Action ItemsOn the heels of our traditional research grant funding cycle culminating at UMDF’s annual Mitochondrial Medicine conference this past June, the...
Read: UMDF Announces Two New Postdoctoral Fellowship Research GrantsUMDF Issues Response to Congressional 21st Century Cures Act RFI DOWNLOAD this document (PDF)...
Read: UMDF Issues Response to Congressional 21st Century Cures Act RFIWe’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read: Energize the Fight – World Mitochondrial Disease Week 2024As part of our commitment to raising patient voices in the regulatory process, we wanted to share an invite from the FDA’s Center for...
Read: Advocacy Invite: FDA to Host Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases on Friday, September 20Dear UMDF Community, For those of you who had the opportunity to join more than 700 patients, family members, clinicians, and researchers at...
Read: An Update from UMDF Board Chair Dr. Alicia PalladinoLast week, UMDF hosted a congressional briefing with the U.S. House of Representatives’ Mitochondrial Disease Caucus, which featured speakers...
Read: Advocacy Update – July 2024: Watch Mito Caucus Briefing, A Win with NIH Language, and more