February 2026 Newsletter: Rare Disease Awareness, Advocacy Updates, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. February is National Heart Month and Rare Disease...
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January 2026 Newsletter: UMDF Turns 30, Legislation We’re Watching in 2026, Nutrition Survey, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. UMDF Marks 30 Years of Serving the Mitochondrial...
Read moreDecember 2025 Newsletter: NY Jets Bring Mito Awareness, New Research Grants, Clinical Trials Updates, and more
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. NY Jets Player and Coach Team Up to Support Mito...
Read moreUMDF Partners with MDA to Co-Fund Two New Mito Research Grants
UMDF has teamed up with the Muscular Dystrophy Association (MDA) to co-fund two new research projects to accelerate the development of...
Read moreYour November UMDF Newsletter: Celebrating a TK2d Therapy Approval, MELAS Survey, Mito Books, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. FDA Approves First-Ever TK2d Therapy Earlier this...
Read moreFDA Approves First-Ever TK2d Therapy
11/3/25, 5pm EST — Earlier today, the U.S. Food and Drug Administration (FDA) approved UCB’s Kygevvi (doxecitine and doxribtimine) to...
Read moreSPECIAL NATIONAL AUTHOR’S DAY FEATURE: Mito Patient and His Mom Talk About Self-Publishing “Children’s Chapter Adventure” Book
KSS Patient and Mom Talk About Self-Publishing Their “Children’s Chapter Adventure” Book Thomas Gordon is not your typical...
Read morePRESS RELEASE: Leading Clinicians and Researchers Urge FDA to Reconsider Path Forward for DCA in Pyruvate Dehydrogenase Complex Deficiency
Leading advocacy groups and more than 80 scientific and medical leaders call on FDA to act urgently on DCA approval for PDCD, a rare and...
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