A Special World Mitochondrial Disease Week Message from UMDF President & CEO Kristen Clifford
Today marks the official kickoff of World Mitochondrial Disease Week, a time designed to help the public better understand mitochondrial...
Read moreLatest News -Press Room
September 2025 Newsletter: World Mito Week, FDA News, Return of Ask The Mito Doc & Bench-to-Bedside
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. UMDF Preps for Mitochondrial Disease Awareness Week...
Read moreUMDF Joins Other Mito Advocacy Groups to Issue Statement and Call to Action Regarding the FDA’s DCA Denial
Sept. 4, 2025 — Earlier today, Saol Therapeutics shared the U.S. Food and Drug Administration (FDA) has issued a Complete Response...
Read moreAugust 2025 Newsletter: No-Cost Genetic Testing, World Mito Week, FDA Action, Ask the Mito Doc Returns, and more
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. ...
Read moreEnergize the Fight – World Mitochondrial Disease Week 2025
We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read moreAdvocacy Action: Ask FDA to Reconsider Elamipretide Decision
Barth Syndrome Foundation, UMDF, and MitoAction leadership were recently notified by Stealth BioTherapeutics that FDA has refused their request...
Read moreJuly 2025 Newsletter: Mito Fund Invests in POLG-Focused Company, MitoMed Grant & Award Winners, mitoSHARE Studies, and more
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. The Mito Fund Announces Investment in Pretzel...
Read more