Advocacy Update – January 2024: New FDA Guidance Encouraging Sign for Rare Disease Patients
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
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Advocacy Update – December 2023
UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read moreA message from UMDF President & CEO Brian Harman regarding STRIDE Study Results from Reneo Pharmaceuticals
To the mitochondrial disease community, We are saddened by the findings recently released by Reneo Pharmaceuticals regarding the STRIDE study...
Read morePDCD FDA Listening Session Report Now Available
On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug...
Read moreMitochondrial Medicine Society Issues Health Guidance for this Winter
COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read moreResearch Update from 2019 accelerators winner Arwen Gao, PhD
In 2019, accelerators project donors helped the mito community make history at the first ever Big Pitch event at the UMDF Symposium on...
Read moreMito Study Roundup: Studies Available for Patients, Caregivers
Mito Study Roundup: Studies Available for Patients, Caregivers Updated 8/22/24 We all want more and better therapies for mitochondrial disease,...
Read moreAdvocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read moreLanguage Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read moreMarking #WorldMitoWeek Through Advocacy
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
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