Events for September 17, 2026

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Leigh Syndrome Awareness Day

Every year, Sept. 17 is set aside for awareness for Leigh syndrome | UMDF Watch for special programming to be added in the coming months.

LHON – New York, New Jersey, Pennsylvania Connect

Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]