This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at [email protected] with any questions. There's also a Facebook group for those in the DC-Area located at this link: https://www.facebook.com/groups/243446586122096 Join Details: One option is to use […]

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy Marks facilitate this call. Recordings from prior LHON Live! calls are located at this link: https://www.umdf.org/types/lhon/ Reach out to Jessica Loomer […]

UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]