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  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • Adult Virtual Support Meeting

    Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • LHON South Central Connect

    LHON South Central Connect

    This call is for those living in the South Central region with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The South Central region includes Texas, Oklahoma, Arkansas, and Louisiana. There's also a Facebook group: LHON-Texas, Oklahoma, Arkansas, & Louisiana Reach out to Donna Basse at sbasse5472@aol.com with any questions. Join […]

  • Support Group for All

    Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • Parenting with LHON

    Parenting with LHON

    This Zoom event is for anyone interested in discussing parenting while affected with LHON vision loss. Bring your questions and comments to share with the group. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or join by phone with one tap mobile: +16699006833,,95371313871# +16468769923,,95371313871# Canada: […]

  • LHON – Northeast Connect

    LHON – Northeast Connect

    This call is for those living in the Northeast with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. The Northeast includes all the New England states (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, & Rhode Island), New York, New Jersey, and Pennsylvania. There are various Facebook groups […]

  • Cousins for a Cure 2026

    Marian House 507 Kings Highway S, Cherry Hill Township, NJ, United States

    9th Annual Cousins For A Cure Please join us at the Marian House located in Cherry Hill (507 Kings Hwy S) for an extraordinary fundraising event benefiting the United Mitochondrial […]