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  • MELAS EL-PFDD

    MELAS EL-PFDD Registration Now Open UMDF is proud to join MitoAction, International Mito Patients, and the Muscular Dystrophy Association to co-host the MELAS Externally Led Patient Focused Drug Development (EL-PFDD) […]

  • Support Group for All

    Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • PPA2 Virtual Conference

    UMDF Cohosting PPA2 Virtual Conference this February UMDF is proud to join the medical community in cohosting the first-ever PPA2 Virtual Conference  on Friday, February 13 at 12pm EST via […]

  • Spouses of LHON – Affected Individuals

    Spouses of LHON – Affected Individuals

    Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. Join Details: One option is to use […]

  • Dads of LHON – Affected “Kids of All Ages”

    Dads of LHON – Affected “Kids of All Ages”

    The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out […]

  • LHON Assistive Technology

    LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. There is also a Facebook group: LHON Assistive Technology To join the Zoom event, use the link below: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or […]