Run for Austin
Cove Island Park 1125 Cove Road, Stamford, CT, United StatesRun for Austin Saturday, November 23, 2024 - 9:00 A.M. In Person Race and Kick-Off Event Cove Island Park Stamford, CT Post-Race Event Join us for a post-race event at […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
LHON Assistive Technology
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
UMDF Bench-to-Bedside Clinical Trials Update – Part 1
UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderator: Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Vijay Modur, MD, PhD - BPGbio Inc. Katies Landes, Executive Director - […]
LHON – Texas/Oklahoma/ Arkansas/Louisiana Connect
NOTE: Since the meeting is intended for those living in Texas/Oklahoma/Arkansas/Louisiana, this virtual meeting is set in Central Time. This call for those living in Texas, Oklahoma, Arkansas, and Louisiana […]