Calendar of Events
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Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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LHON MS Zoom Event This Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both […] |
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UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
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UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […] |
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Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […] |
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UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […] |
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When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]
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Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh. This Zoom event is for anyone interested in discussing Navigating Employment/Careers with LHON. Bring your questions and comments to share with the group. There is also a Facebook group: Navigating Employment/Careers with […] |
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1 event,
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals […] |
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The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected […] |
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1 event,
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […] |
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Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […] |
2 events,
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […] |
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