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12 events found.

Kara Strittmatter

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Email kara@umdf.org
Website https://www.umdfconference.org

Events from this organizer

Today
  • September 2025

  • Tue 16

    UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito

    September 16, 2025 @ 7:00 pm - 8:00 pm

    Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.

  • Thu 18

    Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)

    September 18, 2025 @ 3:00 pm - 4:00 pm
    Virtual Event

    Submit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.

  • Thu 18

    LHON – New York, New Jersey, Pennsylvania Connect

    September 18, 2025 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • October 2025

  • Tue 14

    UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update

    October 14, 2025 @ 12:00 pm - 1:00 pm

    Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an update on access to elamipretide via Expanded Access Program (EAP). This program will focus exclusively on EAP for affected individuals currently on therapy, though it […]

  • Wed 22

    LHON Onset at Age 60+

    October 22, 2025 @ 8:00 pm - 9:00 pm LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

  • Wed 29

    UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment

    October 29, 2025 @ 7:00 pm - 8:00 pm

    Treatments for mitochondrial disease is always a challenge, join us to hear perspectives of sorting out science vs atypical treatments.

  • November 2025

  • Thu 13

    UMDF Ask the Mito Doc Webcast Series – Genetic Testing in Mitochondrial Disease: What Patients and Families Need to Know

    November 13, 2025 @ 7:00 pm - 8:00 pm

    In honor of National Genetic Counselor Awareness Day, join us to hear genetic counselors who work daily with the mitochondrial disease patient community.

  • Tue 25

    UMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano

    November 25, 2025 @ 11:00 am - 12:00 pm

    Join us to learn about the newly approved TK2d Therapy Kygevvi with Dr. Michio Hirano

  • December 2025

  • Wed 10

    LHON West Connect

    December 10, 2025 @ 10:00 pm - 11:30 pm LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • Thu 11

    LHON Southeast Connect

    December 11, 2025 @ 8:00 pm - 9:00 pm LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • Wed 17

    UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2025 with our Mito Docs

    December 17, 2025 @ 7:00 pm - 8:00 pm

    We are looking forward to wrapping up 2025 with our mito docs! Join us to hear from Dr. Bruce Cohen, Dr. Greg Enns, Dr. Jaya Ganesh, and Dr. Matthew Snyder!

  • Thu 18

    LHON – New York, New Jersey, Pennsylvania Connect

    December 18, 2025 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]

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Last Updated:  May 10, 2025 @ 4:12 pm

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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