Kara Strittmatter
Events from this organizer
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UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update
Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an update on access to elamipretide via Expanded Access Program (EAP). This program will focus exclusively on EAP for affected individuals currently on therapy, though it […]
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LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.
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UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment
Treatments for mitochondrial disease is always a challenge, join us to hear perspectives of sorting out science vs atypical treatments.
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UMDF Ask the Mito Doc Webcast Series – Genetic Testing in Mitochondrial Disease: What Patients and Families Need to Know
In honor of National Genetic Counselor Awareness Day, join us to hear genetic counselors who work daily with the mitochondrial disease patient community.
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UMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano
Join us to learn about the newly approved TK2d Therapy Kygevvi with Dr. Michio Hirano
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LHON West Connect
The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest LHON communities! Consider joining the call to share your experiences with others in a similar situation. Contact Bob Banks with any questions at rwbanks@hotmail.com or Patrick Doolittle at doolittlepc@gmail.com with any […]
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LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
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UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2025 with our Mito Docs
We are looking forward to wrapping up 2025 with our mito docs! Join us to hear from Dr. Bruce Cohen, Dr. Greg Enns, Dr. Jaya Ganesh, and Dr. Matthew Snyder!
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LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
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UMDF Bench-to-Bedside Clinical Trials Update – Part 2
UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Amel Karaa, MD Click Here to Register Mitochondrial Disease Clinical Trial Updates – Part 2 Speakers: Patrice Rioux, PhD, Co-Founder, Director and CEO, Thiogenesis Therapeutics Robert Fischer, PhD, CEO/CSO, OMEICOS Therapeutics Niven R. Narain, PhD, President & CEO, BPGBio Ashish Dugar, […]
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UMDF Ask the Mito Doc Webcast Series – CardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year
Let's start 2026 learning about CardiacMito and new information from Dr. Hilary Vernon, Dr. Andreas Barth, and Rebecca McClellan
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UMDF Ask the Mito Doc Webcast Series – Understanding MELAS and Current Therapies/Treatments
Join us to hear from Dr. Amel Karaa who will provide updates on MELAS including recent and upcoming meetings with focus on MELAS.