Kara Strittmatter
LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.
UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders
Dr. William Copeland and Dr. Bruce Cohen will share information on POLG Disorders - providing a dual perspective on research and clinical practice. Please join us!
UMDF Bench-to-Bedside Clinical Trials Update – Part 1
UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderators: Amel Karaa, MD and Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Robert Fischer, MD, PhD - OMEICOS Patrice Rioux, MD, PhD - Thiogenesis Therapeutics Vijay Modur, MD, PhD - BPGbio Inc. Sharon Hamm, Pharm D - Saol Therapeutics […]
UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs
Join us wrap up the year with at least four mitochondrial specialists - ask questions and hear about any important developments in mitochondrial medicine from each doctor's perspective!
LHON Southwest + Pacific Northwest Connect
Wednesday, December 11, 8:00 – 9:00pm ET (5:00 – 6:00pm PT) The LHON Southwest & LHON Pacific Northwest groups are merging! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Pacific Northwest LHON communities! Consider joining the call to share your experiences with […]
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at [email protected] with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or if […]
LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
UMDF Bench-to-Bedside Clinical Trials Update – Part 2
UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Zuela Zolkipli Cunningham, MD Click Here to Register The Effects of L-arginine on Cerebrovascular Reactivity, Perfusion and Neurovascular Coupling in MELAS Syndrome Speaker: Ingrid Tein, BSc, MD, FRCP(C) - Hospital for Sick Children (SickKids), Toronto, CA Clinical Trial Updates - Part […]
UMDF Ask the Mito Doc Webcast Series – A Comprehensive Vision: Understanding Chronic Progressive External Ophthalmoplegia (CPEO) from the Eyes to the Body
Join us to get a bird's eye view of CPEO from two perspectives - the eye and the body as it relates to the CPEO patient.
LHON Sisterhood
LHON Sisterhood Saturday, February 8, 12:00pm – 1:30 pm ET Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss […]