ENERGIZE THE FIGHT.
THE DONKEY AND THE CART
A new memoir by
Charles A. Mohan Jr, Founder of the UMDF
Our Mito Champions
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UMDF, LHON Collective Issue Statement on the FDA’s Decision Not to Approve Idebenone
UMDF is disappointed by the U.S. Food and Drug Administration’s (FDA) decision not to approve idebenone for Leber Hereditary Optic Neuropathy (LHON), a rare mitochondrial disease that causes sudden and often irreversible vision loss. “Far too many patients continue to...
Ask the Mito Doc – February 2026
Ask the Mito Doc - February 2026: Understanding MELAS All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Topic: Understanding MELAS and Current Treatments/Therapies...
February 2026 Newsletter: Rare Disease Awareness, Advocacy Updates, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup.February is National Heart Month and Rare Disease Month For the mitochondrial disease community, heart health is part of everyday health. Join us throughout the month as we...