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12 events found.

Kara Strittmatter

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Email kara@umdf.org
Website https://www.umdfconference.org

Events from this organizer

Today
  • September 2026

  • Thu 17

    LHON – New York, New Jersey, Pennsylvania Connect

    September 17 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]

  • Tue 22

    UMDF Ask the Mito Doc Webcast Series – POLG: Building Knowledge, Advancing Research, Inspiring Hope

    September 22 @ 12:00 pm - 1:00 pm

    Join us to learn more about POLG and UMDF's initiatives for research and collaborative efforts coming soon.

  • October 2026

  • Tue 20

    LHON Onset at Age 60+

    October 20 @ 8:00 pm - 9:00 pm LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

  • Tue 27

    UMDF Ask the Mito Doc Webcast Series – Understanding Access to Therapies: Compassionate Use, Expanded Access, and Off-Label Treatment in Mitochondrial Disease

    October 27 @ 7:00 pm - 8:00 pm

    With drug approvals finally becoming a reality for the mito community, there is still so much to learn about accessing therapies - join us to learn more.

  • December 2026

  • Tue 8

    LHON Sisterhood

    December 8 @ 8:00 pm - 9:30 pm LHON Sisterhood

    LHON Sisterhood Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community […]

  • Wed 9

    LHON West Connect

    December 9 @ 10:00 pm - 11:30 pm LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • Thu 10

    LHON Southeast Connect

    December 10 @ 8:00 pm - 9:00 pm LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • Thu 17

    LHON – New York, New Jersey, Pennsylvania Connect

    December 17 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]

  • March 2027

  • Thu 18

    LHON – New York, New Jersey, Pennsylvania Connect

    March 18, 2027 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • April 2027

  • Thu 8

    LHON Southeast Connect

    April 8, 2027 @ 8:00 pm - 9:00 pm LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • Wed 14

    LHON West Connect

    April 14, 2027 @ 10:00 pm - 11:30 pm LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • Tue 20

    LHON Onset at Age 60+

    April 20, 2027 @ 8:00 pm - 9:00 pm LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

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