With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: UMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCDWith kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: Back to School Resources for Mito FamiliesVideo Assessment for PMM and PolG patients This study, “Development of the Mitochondrial Video Assessment (MVA) as an Outcome Measure for the...
Read: Video Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Casimir/EmmesAbove: Richard Haas, MD, presents Robert Naviaux, MD, PhD, with the 2023 Vanguard Award. The UMDF Vanguard Award is presented to a scientist or...
Read: UMDF Celebrates the 2023 Vanguard Award Winner Robert Naviaux, MD, PhDOn Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – May 2023: What Does the End of the Public Health Emergency Mean for Medicaid?COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read: Updated COVID-19 Recommendations from UMDF’s Science & Medical Advisory Board – May 2023Funding nearly $15 million in research – research that is often underfunded but critical to the diagnosis and treatment of patients with...
Read: Research Update from 2013 UMDF Grant Recipient James Stewart, PhDOn Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – April 2023: Spring on Capitol HillOn Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – March 2023: Federal Appropriations 101 and Why Advocacy Matters for MitoCyclerion Therapeutics to Discuss CY6463 MELAS Clinical Data at a Webinar Hosted by United Mitochondrial Disease Foundation Company to...
Read: Reata Pharmaceuticals Announces FDA Approval of SKYCLARYS™ (Omaveloxolone) for Friedreich’s Ataxia. Learn What this Means for the Mito Community.