Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read: Advocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New RuleIn 2019, accelerators project donors helped the mito community make history at the first ever Big Pitch event at the UMDF Symposium on...
Read: Research Update from 2019 accelerators winner Arwen Gao, PhDMito Study & Survey Roundup Updated 8/22/26 We all want more and better therapies for mitochondrial disease, and to achieve this goal we...
Read: Mito Study Roundup: Studies Available for Patients, CaregiversThe House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read: Language Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations ReportWith kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: Marking #WorldMitoWeek Through AdvocacyWith kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: UMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCDWith kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: Back to School Resources for Mito FamiliesVideo Assessment for PMM and PolG patients This study, “Development of the Mitochondrial Video Assessment (MVA) as an Outcome Measure for the...
Read: Video Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Casimir/EmmesAbove: Richard Haas, MD, presents Robert Naviaux, MD, PhD, with the 2023 Vanguard Award. The UMDF Vanguard Award is presented to a scientist or...
Read: UMDF Celebrates the 2023 Vanguard Award Winner Robert Naviaux, MD, PhDOn Tuesday, December 20, 2022, lawmakers unveiled their long-awaited $1.7 trillion government funding package. The package includes 12...
Read: Advocacy Update – May 2023: What Does the End of the Public Health Emergency Mean for Medicaid?