UMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read: Advocacy Update – January 2024: New FDA Guidance Encouraging Sign for Rare Disease PatientsUMDF Advocacy Update – Dec. 2023 The House is scheduled to be out of session until January, while the Senate is scheduled to remain in...
Read: Advocacy Update – December 2023To the mitochondrial disease community, We are saddened by the findings recently released by Reneo Pharmaceuticals regarding the STRIDE study...
Read: A message from UMDF President & CEO Brian Harman regarding STRIDE Study Results from Reneo PharmaceuticalsOn September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug...
Read: PDCD FDA Listening Session Report Now AvailableCOVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read: Mitochondrial Medicine Society Issues Health Guidance for this WinterPublished 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read: Advocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New RuleIn 2019, accelerators project donors helped the mito community make history at the first ever Big Pitch event at the UMDF Symposium on...
Read: Research Update from 2019 accelerators winner Arwen Gao, PhDMito Study & Survey Roundup Updated 5/22/26 We all want more and better therapies for mitochondrial disease, and to achieve this goal we...
Read: Mito Study Roundup: Studies Available for Patients, CaregiversThe House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read: Language Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations ReportWith kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read: Marking #WorldMitoWeek Through Advocacy