PDCD FDA Listening Session Report Now Available
On September 8, 2023, the United Mitochondrial Disease Foundation co-hosted a Patient-led Listening Session with the U.S. Food & Drug...
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Mitochondrial Medicine Society Issues Health Guidance for this Winter
COVID-19 updates 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United...
Read moreAdvocacy Update – November 2023: CMS Changes Definition of Medicare Caregiver in New Rule
Published 11/29/23 President Biden Signs Funding Bill, Averting a Government Shutdown On November 16, President Biden signed the stopgap...
Read moreResearch Update from 2019 accelerators winner Arwen Gao, PhD
In 2019, accelerators project donors helped the mito community make history at the first ever Big Pitch event at the UMDF Symposium on...
Read moreMito Study Roundup: Studies Available for Patients, Caregivers
Mito Study & Survey Roundup Updated 5/22/26 We all want more and better therapies for mitochondrial disease, and to achieve this goal we...
Read moreLanguage Encouraging NIH to “Expand, Accelerate, and Collaborate” on Mito Research Makes it in HHS Appropriations Report
The House of Representatives wait for a new speaker has entered week three. Republicans returned to Washington earlier this week for a...
Read moreMarking #WorldMitoWeek Through Advocacy
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreUMDF Reacts to Today’s Historic FDA Listening for the Mitochondrial Disease PDCD
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreBack to School Resources for Mito Families
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF...
Read moreVideo Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Casimir/Emmes
Video Assessment for PMM and PolG patients This study, “Development of the Mitochondrial Video Assessment (MVA) as an Outcome Measure for the...
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