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Advocacy Update – Aug 2024: Help Shape the Legislative Landscape for the Mito Community Through Survey, UMDF Action Items
In a few weeks, we’ll join other mitochondrial disease-focused patient advocacy groups across the globe in marking World Mitochondrial Disease...
Read: Advocacy Update – Aug 2024: Help Shape the Legislative Landscape for the Mito Community Through Survey, UMDF Action ItemsUMDF Announces Two New Postdoctoral Fellowship Research Grants
On the heels of our traditional research grant funding cycle culminating at UMDF’s annual Mitochondrial Medicine conference this past June, the...
Read: UMDF Announces Two New Postdoctoral Fellowship Research GrantsUMDF Issues Response to Congressional 21st Century Cures Act RFI
UMDF Issues Response to Congressional 21st Century Cures Act RFI DOWNLOAD this document (PDF)...
Read: UMDF Issues Response to Congressional 21st Century Cures Act RFIEnergize the Fight – World Mitochondrial Disease Week 2024
We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World...
Read: Energize the Fight – World Mitochondrial Disease Week 2024Advocacy Invite: FDA to Host Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases on Friday, September 20
As part of our commitment to raising patient voices in the regulatory process, we wanted to share an invite from the FDA’s Center for...
Read: Advocacy Invite: FDA to Host Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases on Friday, September 20An Update from UMDF Board Chair Dr. Alicia Palladino
Dear UMDF Community, For those of you who had the opportunity to join more than 700 patients, family members, clinicians, and researchers at...
Read: An Update from UMDF Board Chair Dr. Alicia PalladinoAdvocacy Update – July 2024: Watch Mito Caucus Briefing, A Win with NIH Language, and more
Last week, UMDF hosted a congressional briefing with the U.S. House of Representatives’ Mitochondrial Disease Caucus, which featured speakers...
Read: Advocacy Update – July 2024: Watch Mito Caucus Briefing, A Win with NIH Language, and moreUMDF Names Award Winners for 2024
From Left to right: Fatema Shikora with Jennifer Chickering of Tisento Therapeutics, Jared Goettemoeller with Dr. Tyler...
Read: UMDF Names Award Winners for 2024An Announcement from UMDF Board Chair Dr. Alicia Palladino
Dear UMDF Community: As you know, Brian Harman has been the UMDF President and CEO for the past six years, driving numerous critical...
Read: An Announcement from UMDF Board Chair Dr. Alicia Palladino