We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that increased awareness, attention, and funds will move the needle toward effective treatments and cures for the entire mito community.
TK2d Tuesday – September 10
CHOP’s 5th Annual Mitochondrial Education Day – September 16, 9am – 3:30pm ET
UMDF Virtual Capitol Hill Day – September 17
Leigh Syndrome Awareness Day – September 17
Leigh Syndrome Symposium – September 17, 9am
LHON Awareness Day – September 19
LHON Awareness Day Webinar – September 19, 7am ET
CHOP’s 5th Annual Next Generation Therapeutics Virtual Panel – September 20, 10am – 12pm ET
FDA Listening Meeting on Genetic Therapy Treatments for Rare Diseases – September 20, 11am-4:30pm ET
Global Light Up for Mito – September 21
More info on global events and initiatives: mitochondrialdiseaseweek.org
Here’s how you can make a difference:
- Watch UMDF social media for opportunities to participate in events, share content, and more.
- Download the below World Mito Week images to be ready or simply repost from UMDF social media.
- Sign up to participate in UMDF Capitol Hill Day, where UMDF will set you up the your congressional offices to talk mito legislation, including telehealth, medical nutrition, the mito caucus, and more. Deadline is Aug. 13. Act now, spaces are limited.
- Make requests for local buildings/monuments to light up GREEN on September 21.
- We’d love your help in spreading awareness about #ThatMitoLife and #IlluminateTomorrow. Send us a 30 SECOND video detailing an obstacle you face in your daily life with #mitochondrialdisease OR share with us a helpful strategy, assistive equipment, or how-to. We’ll share out these quick spots across our social during #WMDW! Email 30 second videos to news@umdf.org by Sept 1.
- Grab some of our Limited Edition Awareness MERCH before #WMDW. These are available on tees or assorted sweatshirts, but only available for order August 1-23! Don’t delay.
Mito Facts (X/Twitter)
