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93 events found.

Events

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  • February 2025

  • Wed 12

    Support Group for All

    February 12, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Wed 12

    UMDF Ask the Mito Doc Webcast Series – Comprehensive Care in Kearns-Sayre and Pearson Syndromes: Diagnosis, Symptom Management, and Support Strategies

    February 12, 2025 @ 7:00 pm - 8:00 pm

    Join us to learn more about Kearns-Sayre Syndrome and Pearson Syndrome from Dr. Rebecca Ganetzky and Dr. Sumit Parikh.

  • Fri 14

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 14, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 18

    Spouses of LHON – Affected Individuals

    February 18, 2025 @ 8:00 pm - 9:30 pm Spouses of LHON – Affected Individuals

    Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals […]

  • Fri 21

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 21, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 25

    Mindfulness with Mary Series (monthly)

    February 25, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Tue 25

    LHON Assistive Technology

    February 25, 2025 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

  • Thu 27

    Central Region Virtual Support Meeting

    February 27, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 28

    Rare Disease Day

    February 28, 2025

    Visit rarediseaseday.org and share!

  • Fri 28

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 28, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • March 2025

  • Mon 3

    California Virtual Support Group Meeting

    March 3, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 3

    California Virtual Support Group Meeting

    March 3, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Tue 4

    LHON – Teens

    March 4, 2025 @ 8:00 pm - 9:00 pm LHON – Teens

    This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact […]

  • Wed 5

    Volunteer Interest Meeting

    March 5, 2025 @ 12:00 pm - 1:00 pm Volunteer Interest Meeting 2025

    Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising […]

  • Wed 5

    LHON Live! Monthly Call

    March 5, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 6

    Adult Virtual Support Meeting

    March 6, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 7

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    March 7, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 10

    UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update

    March 10, 2025 @ 12:00 pm - 1:00 pm

    We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.

  • Wed 12

    Frontiers in Mitochondrial Medicine

    March 12, 2025 @ 8:00 am - 5:00 pm

    Frontiers in Mitochondrial Medicine ​​​​​March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the […]

  • Wed 12

    Support Group for All

    March 12, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Fri 14

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    March 14, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 15

    Northeast PA Support Meeting

    March 15, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mon 17

    Parent and Caregiver Virtual Support Meeting

    March 17, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Wed 19

    Moms of LHON – Affected “Kids of All Ages”

    March 19, 2025 @ 8:00 pm - 9:30 pm Moms of LHON – Affected “Kids of All Ages”

    If you're a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. There's […]

  • Thu 20

    LHON – New York, New Jersey, Pennsylvania Connect

    March 20, 2025 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]

  • Fri 21

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    March 21, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 25

    Mindfulness with Mary Series (monthly)

    March 25, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Thu 27

    Central Region Virtual Support Meeting

    March 27, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 28

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    March 28, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • April 2025

  • Wed 2

    LHON Live! Monthly Call

    April 2, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 3

    Clinical Trial Readiness and Information Group

    April 3, 2025 @ 12:00 pm - 1:00 pm

    If you're interested in therapies and cures for mitochondrial disease, it begins with us. It begins with clinical trials. Please join us for an ongoing series. Learn about clinical trials, clinical research, […]

  • Thu 3

    Adult Virtual Support Meeting

    April 3, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 4

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    April 4, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 7

    California Virtual Support Group Meeting

    April 7, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 7

    California Virtual Support Group Meeting

    April 7, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Wed 9

    Support Group for All

    April 9, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Wed 9

    LHON West Connect

    April 9, 2025 @ 10:00 pm - 11:30 pm LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • Thu 10

    LHON Southeast Connect

    April 10, 2025 @ 8:00 pm - 9:00 pm LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • Fri 11

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    April 11, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Fri 18

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    April 18, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 19

    Northeast PA Support Meeting

    April 19, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mon 21

    Parent and Caregiver Virtual Support Meeting

    April 21, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Mon 21

    LHON Midwest Connect

    April 21, 2025 @ 8:00 pm - 9:00 pm LHON Midwest Connect

    This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa […]

  • Tue 22

    Mindfulness with Mary Series (monthly)

    April 22, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Tue 22

    LHON Assistive Technology

    April 22, 2025 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

  • Wed 23

    LHON Onset at Age 60+

    April 23, 2025 @ 8:00 pm - 9:00 pm LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

  • Thu 24

    Central Region Virtual Support Meeting

    April 24, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 25

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    April 25, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Wed 30

    UMDF Ask the Mito Doc Webcast Series – Integrating Physical and Emotional Pain Management in Mitochondrial Disease Care

    April 30, 2025 @ 7:00 pm - 8:00 pm

    Looking for information on Pain Management? Join us April 30.

  • May 2025

  • Thu 1

    Adult Virtual Support Meeting

    May 1, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 2

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    May 2, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 5

    California Virtual Support Group Meeting

    May 5, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 5

    California Virtual Support Group Meeting

    May 5, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Wed 7

    LHON Live! Monthly Call

    May 7, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Fri 9

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    May 9, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 10

    LHON 3460 Zoom Meeting

    May 10, 2025 @ 12:00 pm - 1:30 pm

    This Zoom Event is for those with an interest in the LHON 3460 mutation. There is also a Facebook group for the LHON 3460 mutation: https://www.facebook.com/groups/768643820476272 Join Details: One option is to […]

  • Tue 13

    UMDF Ask the Mito Doc Webcast Series – Mitochondrial Disease and Biorepositories: Why Participation Matters

    May 13, 2025 @ 12:00 pm - 1:00 pm

    Looking for information on Pain Management? Join us April 30.

  • Wed 14

    Support Group for All

    May 14, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Fri 16

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    May 16, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 17

    Northeast PA Support Meeting

    May 17, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mon 19

    Parent and Caregiver Virtual Support Meeting

    May 19, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Thu 22

    Central Region Virtual Support Meeting

    May 22, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 23

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    May 23, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Tue 27

    Mindfulness with Mary Series (monthly)

    May 27, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Fri 30

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    May 30, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • June 2025

  • Mon 2

    California Virtual Support Group Meeting

    June 2, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • Mon 2

    California Virtual Support Group Meeting

    June 2, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • Tue 3

    Patient/Family Webcast: What to Expect at UMDF Mito Med 2025

    June 3, 2025 @ 12:00 pm - 1:00 pm

    Join us on June 3, 2025 at 9:00am Pacific/10:00am Mountain/11:00am Central/12:00pm Eastern  Click Here to Register Join us as we share information about the upcoming UMDF Mitochondrial Medicine 2025 in St. Louis. Visit umdfconference.org for details and registration information.   If you are new to using ZOOM, we suggest that you log in early on […]

  • Wed 4

    Volunteer Interest Meeting

    June 4, 2025 @ 12:00 pm - 1:00 pm Volunteer Interest Meeting 2025

    Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising toward treatments -- you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol  

  • Wed 4

    LHON Live! Monthly Call

    June 4, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • Thu 5

    Adult Virtual Support Meeting

    June 5, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • Fri 6

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    June 6, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Wed 11

    Support Group for All

    June 11, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • Fri 13

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    June 13, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Mon 16

    Parent and Caregiver Virtual Support Meeting

    June 16, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

  • Wed 18

    UMDF Mitochondrial Medicine 2025 in St. Louis, MO

    June 18, 2025 - June 21, 2025
    Hyatt Regency St. Louis Arch 315 CHESTNUT STREET, ST LOUIS, MO, MO, United States

    Join us in St. Louis, Missouri, as we bring together the best minds in mitochondrial medicine and the patients we serve.

  • Thu 19

    LHON – New York, New Jersey, Pennsylvania Connect

    June 19, 2025 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • Fri 20

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    June 20, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Sat 21

    Northeast PA Support Meeting

    June 21, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Tue 24

    Mindfulness with Mary Series (monthly)

    June 24, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Tue 24

    LHON Assistive Technology

    June 24, 2025 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. There is also a Facebook group: LHON Assistive Technology To join the Zoom event, use the link below: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or […]

  • Thu 26

    Central Region Virtual Support Meeting

    June 26, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]

  • Fri 27

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    June 27, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • July 2025

  • Tue 1

    LHON – Teens

    July 1, 2025 @ 8:00 pm - 9:00 pm LHON – Teens

    This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 […]

  • Wed 2

    LHON Live! Monthly Call

    July 2, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • Thu 3

    Adult Virtual Support Meeting

    July 3, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • Fri 4

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    July 4, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Mon 7

    California Virtual Support Group Meeting

    July 7, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • Mon 7

    California Virtual Support Group Meeting

    July 7, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • Wed 9

    Support Group for All

    July 9, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • Fri 11

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    July 11, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Fri 18

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    July 18, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Sat 19

    Northeast PA Support Meeting

    July 19, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

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We collaborate to support and empower mitochondrial disease patients and families, drive awareness, mobilize advocacy, improve access to diagnosis and quality care, and accelerate breakthroughs in treatments and cures.

 

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