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93 events found.

Events

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  • October 2025

  • Wed 1

    LHON Live! Monthly Call

    October 1, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 2

    Adult Virtual Support Meeting

    October 2, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 3

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    October 3, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 6

    California Virtual Support Group Meeting

    October 6, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • Mon 6

    California Virtual Support Group Meeting

    October 6, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Wed 8

    Support Group for All

    October 8, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Fri 10

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    October 10, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 14

    UMDF, MitoAction, and POLG Foundation Special Webcast – Elamipretide Expanded Access Program (EAP) Update

    October 14, 2025 @ 12:00 pm - 1:00 pm

    Elamipretide Expanded Access Program Update In collaboration with MitoAction and POLG Foundation, join us on Tuesday, Oct. 14 at 12pm ET for special webinar with Stealth BioTherapeutics to provide an […]

  • Fri 17

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    October 17, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 18

    Northeast PA Support Meeting

    October 18, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Wed 22

    LHON Onset at Age 60+

    October 22, 2025 @ 8:00 pm - 9:00 pm LHON Onset at Age 60+

    Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

  • Thu 23

    Central Region Virtual Support Meeting

    October 23, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 24

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    October 24, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 28

    Mindfulness with Mary Series (monthly)

    October 28, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Tue 28

    LHON Assistive Technology

    October 28, 2025 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

  • Wed 29

    UMDF Ask the Mito Doc Webcast Series – Fact vs. Fiction: Sorting Science from Speculation in Mito Treatment

    October 29, 2025 @ 7:00 pm - 8:00 pm

    Treatments for mitochondrial disease is always a challenge, join us to hear perspectives of sorting out science vs atypical treatments.

  • Fri 31

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    October 31, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • November 2025

  • Mon 3

    California Virtual Support Group Meeting

    November 3, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 3

    California Virtual Support Group Meeting

    November 3, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Tue 4

    LHON – Teens

    November 4, 2025 @ 8:00 pm - 9:00 pm LHON – Teens

    This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact […]

  • Wed 5

    LHON Live! Monthly Call

    November 5, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 6

    Adult Virtual Support Meeting

    November 6, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 7

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    November 7, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Wed 12

    Support Group for All

    November 12, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Thu 13

    UMDF Ask the Mito Doc Webcast Series – Genetic Testing in Mitochondrial Disease: What Patients and Families Need to Know

    November 13, 2025 @ 7:00 pm - 8:00 pm

    In honor of National Genetic Counselor Awareness Day, join us to hear genetic counselors who work daily with the mitochondrial disease patient community.

  • Fri 14

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    November 14, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 15

    Northeast PA Support Meeting

    November 15, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mon 17

    Parent and Caregiver Virtual Support Meeting

    November 17, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Wed 19

    TK2d Virtual Support Meeting November 2025

    November 19, 2025 @ 12:00 pm - 1:00 pm

    TK2d "Virtual" Support Meeting Join us for a VIRTUAL MEETING! Wednesday, November 19 ,2025 12:00pm-1:00pm ET REGISTER HERE VIA ZOOM After registering, you will receive a confirmation email containing information […]

  • Fri 21

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    November 21, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 25

    UMDF Ask the Mito Doc Special Webcast – Focused on TK2d Therapy Kygevvi with Dr. Michio Hirano

    November 25, 2025 @ 11:00 am - 12:00 pm

    Join us to learn about the newly approved TK2d Therapy Kygevvi with Dr. Michio Hirano

  • Thu 27

    Central Region Virtual Support Meeting

    November 27, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 28

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    November 28, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • December 2025

  • Mon 1

    California Virtual Support Group Meeting

    December 1, 2025 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 1

    California Virtual Support Group Meeting

    December 1, 2025 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Wed 3

    Volunteer Interest Meeting

    December 3, 2025 @ 12:00 pm - 1:00 pm Volunteer Interest Meeting 2025

    Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising […]

  • Wed 3

    LHON Live! Monthly Call

    December 3, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 4

    Adult Virtual Support Meeting

    December 4, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 5

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    December 5, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Wed 10

    Support Group for All

    December 10, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Wed 10

    LHON West Connect

    December 10, 2025 @ 10:00 pm - 11:30 pm LHON West Connect

    The LHON Southwest & LHON Pacific Northwest groups have merged! This Zoom event is a great opportunity to connect and discuss resources of interest to the Southwest LHON (previously California) & Northwest […]

  • Thu 11

    LHON Southeast Connect

    December 11, 2025 @ 8:00 pm - 9:00 pm LHON Southeast Connect

    This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

  • Fri 12

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    December 12, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 15

    Parent and Caregiver Virtual Support Meeting

    December 15, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Tue 16

    LHON Assistive Technology

    December 16, 2025 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]

  • Wed 17

    UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2025 with our Mito Docs

    December 17, 2025 @ 7:00 pm - 8:00 pm

    We are looking forward to wrapping up 2025 with our mito docs! Join us to hear from Dr. Bruce Cohen, Dr. Greg Enns, Dr. Jaya Ganesh, and Dr. Matthew Snyder!

  • Thu 18

    LHON – New York, New Jersey, Pennsylvania Connect

    December 18, 2025 @ 7:00 pm - 8:00 pm

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]

  • Fri 19

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    December 19, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 20

    Northeast PA Support Meeting

    December 20, 2025 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Tue 23

    Mindfulness with Mary Series (monthly)

    December 23, 2025 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Thu 25

    Central Region Virtual Support Meeting

    December 25, 2025 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 26

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    December 26, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • January 2026

  • Thu 1

    Adult Virtual Support Meeting

    January 1 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 2

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    January 2 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 5

    California Virtual Support Group Meeting

    January 5 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 5

    California Virtual Support Group Meeting

    January 5 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • Mon 5

    UMDF Bench-to-Bedside Clinical Trials Update – Part 2

    January 5 @ 12:00 pm - 1:00 pm

    UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Amel Karaa, MD Click Here to Register Mitochondrial Disease Clinical Trial Updates – Part 2 Speakers: […]

  • Wed 7

    LHON Live! Monthly Call

    January 7 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Fri 9

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    January 9 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Wed 14

    Support Group for All

    January 14 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Fri 16

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    January 16 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Sat 17

    Northeast PA Support Meeting

    January 17 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Tue 20

    UMDF Ask the Mito Doc Webcast Series – CardiacMito 2026: Genetics and Clinical Insights to Jumpstart the Year

    January 20 @ 7:00 pm - 8:00 pm

    Let's start 2026 learning about CardiacMito and new information from Dr. Hilary Vernon, Dr. Andreas Barth, and Rebecca McClellan

  • Thu 22

    Central Region Virtual Support Meeting

    January 22 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]

  • Fri 23

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    January 23 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Tue 27

    Mindfulness with Mary Series (monthly)

    January 27 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Fri 30

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    January 30 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • February 2026

  • Mon 2

    California Virtual Support Group Meeting

    February 2 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • Mon 2

    California Virtual Support Group Meeting

    February 2 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • Wed 4

    LHON Live! Monthly Call

    February 4 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • Thu 5

    Adult Virtual Support Meeting

    February 5 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • Fri 6

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 6 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Tue 10

    MELAS EL-PFDD

    February 10 @ 10:00 am - 5:00 pm

    MELAS EL-PFDD Registration Now Open UMDF is proud to join MitoAction, International Mito Patients, and the Muscular Dystrophy Association to co-host the MELAS Externally Led Patient Focused Drug Development (EL-PFDD) meeting on February 10, 2026. This virtual event is open to all members of the mitochondrial disease community, including patients, caregivers, clinicians, researchers, and industry […]

  • Wed 11

    Support Group for All

    February 11 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email containing information about joining the meeting.

  • Fri 13

    PPA2 Virtual Conference

    February 13 @ 12:00 pm - 5:00 pm

    UMDF Cohosting PPA2 Virtual Conference this February UMDF is proud to join the medical community in cohosting the first-ever PPA2 Virtual Conference  on Friday, February 13 at 12pm EST via Zoom. The conference, which is focused on “Connecting Clinical Care and Scientific Discovery,” is being organized and moderated by Amy Goldstein, MD and Hilary Vernon, […]

  • Fri 13

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 13 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Tue 17

    UMDF Ask the Mito Doc Webcast Series – Understanding MELAS and Current Therapies/Treatments

    February 17 @ 12:00 pm - 1:00 pm

    Join us to hear from Dr. Amel Karaa who will provide updates on MELAS including recent and upcoming meetings with focus on MELAS.

  • Tue 17

    Spouses of LHON – Affected Individuals

    February 17 @ 8:00 pm - 9:30 pm Spouses of LHON – Affected Individuals

    Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals Zoom event. This Zoom event is a great opportunity to get to know each other and share LHON-related experiences. Join Details: One option is to use […]

  • Wed 18

    Dads of LHON – Affected “Kids of All Ages”

    February 18 @ 8:00 pm - 9:30 pm Dads of LHON – Affected “Kids of All Ages”

    The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every other month at 8:00pm Eastern/5:00pm Pacific. If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation.  Hosts Tony Wright and Jim Tolve host this open-discussion format call. Reach out […]

  • Fri 20

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 20 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Sat 21

    Northeast PA Support Meeting

    February 21 @ 10:00 am - 12:00 pm Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mon 23

    LHON Assistive Technology

    February 23 @ 8:00 pm - 9:30 pm LHON Assistive Technology

    This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. There is also a Facebook group: LHON Assistive Technology To join the Zoom event, use the link below: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 3871 Or […]

  • Tue 24

    Mindfulness with Mary Series (monthly)

    February 24 @ 12:00 pm - 1:30 pm Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE

  • Thu 26

    Central Region Virtual Support Meeting

    February 26 @ 7:00 pm - 8:00 pm Central Region Virtual Support Meeting

    Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]

  • Fri 27

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    February 27 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • March 2026

  • Mon 2

    California Virtual Support Group Meeting

    March 2 @ 10:00 am - 11:00 am

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • Mon 2

    California Virtual Support Group Meeting

    March 2 @ 10:00 am - 11:00 am California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • Tue 3

    LHON – Affected Women

    March 3 @ 8:00 pm - 9:00 pm LHON – Affected Women

    If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer jessica.loomer@gmail.com with any questions. There's also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 […]

  • Wed 4

    Volunteer Interest Meeting

    March 4 @ 12:00 pm - 1:00 pm Volunteer Interest Meeting 2025

    Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising toward treatments -- you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol  

  • Wed 4

    LHON Live! Monthly Call

    March 4 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]

  • Thu 5

    Adult Virtual Support Meeting

    March 5 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • Fri 6

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    March 6 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Mon 9

    UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and Clinical Research Pavilion

    March 9 @ 12:00 pm - 1:00 pm

    Join us to learn more about Clinical Trial Readiness, learnings from the 2025 Clinical Research Pavilion (CRP) and what is coming for the 2026 CRP.

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To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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We collaborate to support and empower mitochondrial disease patients and families, drive awareness, mobilize advocacy, improve access to diagnosis and quality care, and accelerate breakthroughs in treatments and cures.

 

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