• LHON – New York, New Jersey, Pennsylvania Connect

    Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]

  • California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • UMDF Bench-to-Bedside Clinical Trials Update – Part 2

    UMDF Bench-to-Bedside - Clinical Trials Update - Part 2 Moderator: Philip Yeske, PhD and Amel Karaa, MD Click Here to Register Mitochondrial Disease Clinical Trial Updates – Part 2 Speakers: Patrice Rioux, PhD, Co-Founder, Director and CEO, Thiogenesis Therapeutics Robert Fischer, PhD, CEO/CSO, OMEICOS Therapeutics Niven R. Narain, PhD, President & CEO, BPGBio Ashish Dugar, […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call!  Hosts Jessica Loomer and Andy […]