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12 events found.

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  • September 2025

  • Wed 3

    Volunteer Interest Meeting

    September 3, 2025 @ 12:00 pm - 1:00 pm Volunteer Interest Meeting 2025

    Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising […]

  • Wed 3

    LHON Live! Monthly Call

    September 3, 2025 @ 8:00 pm - 9:00 pm LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Thu 4

    Adult Virtual Support Meeting

    September 4, 2025 @ 8:00 pm - 9:00 pm Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Fri 5

    Mitochondrial Replacement Therapy Bench-to-Bedside Seminar

    September 5, 2025 @ 10:00 am - 11:30 am
    Virtual Event

    OPEN TO ALL UMDF Bench-to-Bedside Seminar Mitochondrial Replacement Therapy (MRT): Shared Experiences from the UK & Australia and Implications in the US ​​​​​​ Friday, Sept. 5 at 10:00 am ET Last month, researchers in the United Kingdom published two papers sharing promising results from eight births utilizing mitochondrial replacement therapy, a fertility technique that helps prevent […]

  • Fri 5

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    September 5, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

  • Tue 9

    TK2d Tuesday

    September 9, 2025

    Join UMDF as we mark TK2d Tuesday. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease caused by inherited mutations in TK2, a nuclear gene responsible for making a […]

  • Wed 10

    Support Group for All

    September 10, 2025 @ 12:00 pm - 1:00 pm Support Group for All

    When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]

  • Fri 12

    Teen and Young Adult Virtual Meet-Up Ages 16-35

    September 12, 2025 @ 8:00 pm - 9:00 pm Teen and Young Adult Virtual Meet-Up Ages 16-35

    UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]

  • Mon 15

    World Mitochondrial Disease Week 2025

    September 15, 2025 - September 21, 2025
  • Mon 15

    Parent and Caregiver Virtual Support Meeting

    September 15, 2025 @ 8:00 pm - 9:00 pm Parent and Caregiver Virtual Support Meeting

    Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]

  • Tue 16

    UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito

    September 16, 2025 @ 7:00 pm - 8:00 pm

    Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.

  • Thu 18

    Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)

    September 18, 2025 @ 3:00 pm - 4:00 pm
    Virtual Event

    Submit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.

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Last Updated:  Mar 10, 2025 @ 11:15 am

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To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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Pittsburgh, PA 15239

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1-888-317-UMDF (8633)

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Mission of UMDF

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

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