Events
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TK2d Tuesday
Join UMDF as we mark TK2d Tuesday. Thymidine kinase 2 deficiency (TK2d) is a rare genetic mitochondrial disease caused by inherited mutations in TK2, a nuclear gene responsible for making a […]
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Support Group for All
When: The Second Wednesday of each month at 12:00 PM Eastern Time (US and Canada) Register in advance for this meeting: https://umdf.zoom.us/meeting/register/tZcpcumsrTsiH9w1_pPmjbc-KqRCAIrmQCKt After registering, you will receive a confirmation email […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
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UMDF Ask the Mito Doc Webcast Series – Seizures in Patients with Mito
Join us to hear from Dr. Russell Saneto as he shares insights on seizure management.
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Community Webinar with Saol Therapeutics to Discuss SL1009 (DCA)
Virtual EventSubmit questions and hear directly from Saol leadership regarding DCA, the clinical trial, and the path forward with the FDA.
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LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]
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LHON Awareness Day
Join UMDF as we mark Leber hereditary optic neuropathy day! Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […]
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Mindfulness with Mary Series (monthly)
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE