Energy for Life Walk – Orlando
Blanchard Park 2451 Dean Road, Orlando, PA, United StatesENERGY FOR LIFE WALK ORLANDO OCTOBER 12, 2024 LOCATION Blanchard Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes […]
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place […]
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person. Please let us […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […]
LHON Sisterhood
LHON Sisterhood Saturday, October 19, 12:00 – 1:00 pm ET Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
LHON & Entrepreneurs
LHON & Entrepreneurs Monday, October 21, 8:00 – 9:00 pm ET Being an Entrepreneur can be a rewarding employment path for some in the LHON community. This Zoom event is […]
Mindfulness with Mary Series
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE
UMDF Ask the Mito Doc Webcast Series – Connecting the Dots
Join us to hear perspectives from Dr. Andrea Gropman and Dr. Bharantendu Chandra as they share their experiences with common mito disease and ultra rare diseases.
LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.