Calendar of Events
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California Virtual Support Group Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
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Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
3 events,
Energy for Life Walk – Indianapolis
Energy for Life Walk – Indianapolis
ENERGY FOR LIFE WALK INDIANAPOLIS LOCATION Coxhall Gardens - Children's Pavilion SCHEDULE Site Opens: 10:00 AM Opening Ceremony: 11:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Delaware Valley
Energy for Life Walk – Delaware Valley
ENERGY FOR LIFE WALK DELAWARE VALLEY LOCATION Pennington Park SCHEDULE Site Opens: 10:30 AM Opening Ceremony: 11:30 AM CONTACT Monika Hancock - 412-225-9066
LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
1 event,
Energy for Life Walk – Chicago
Energy for Life Walk – Chicago
ENERGY FOR LIFE WALK CHICAGO LOCATION Katherine Legge Memorial Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Angela Sommer - 412-744-1066
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2 events,
TK2d Tuesday
Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the TK2d community and its resilience. Learn more at umdf.org/tk2d.
LHON-Affected Women
LHON-Affected Women
If you're a woman with LHON vision (affected), consider joining the call and sharing your experiences with others in a similar situation. Reach out to Jessica Loomer [email protected] with any questions. There's also a Facebook group for LHON-Affected Women located at this link: https://www.facebook.com/groups/404650029721330 Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 […]
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2 events,
UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
Join us as we hear from Dr. Austin Larson and Dr. Eva Morava-Kozicz as they provide updates on Genetic Testing for Mitochondrial Disease Patients.
LHON Southeast Connect
LHON Southeast Connect
This call is for those living in Georgia and Florida, with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
2 events,
Energy for Life Walk – National (Virtual)
ENERGY FOR LIFE WALK NATIONAL SEPTEMBER 14 - 21, 2024 LOCATION A Venue of Your Choice! SCHEDULE A Start of Your Choice! CONTACT Monika Hancock - 412-225-9066 Angela Sommer - 412-539-9450
Energy for Life Walk – Kansas City
Energy for Life Walk – Kansas City
ENERGY FOR LIFE WALK KANSAS CITY SEPTEMBER 14, 2024 LOCATION Lowenstein Park 1901 NW Lowenstein Dr Lee's Summit, MO 64081 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Deidra Atchley - 913-208-8725 Monika Hancock- 412-225-9066
3 events,
World Mitochondrial Disease Awareness Week
Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease Week, September 16-22, 2024! Together, we can promote understanding and recognition with the hope that increased awareness, attention, and funds will move the needle toward […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
3 events,
LHON Awareness Day
Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. Learn more at https://umdf.org/LHON.
3 events,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
6 events,
Energy for Life Walk – Detroit
Energy for Life Walk – Detroit
ENERGY FOR LIFE WALK DETROIT SEPTEMBER 21, 2024 LOCATION Rotary Park - Pavilions 3 & 4 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Southern Wisconsin
Energy for Life Walk – Southern Wisconsin
ENERGY FOR LIFE WALK SO. WISCONSIN SEPTEMBER 21, 2024 LOCATION Fox Brook Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
Energy for Life Walk – Columbus
Energy for Life Walk – Columbus
ENERGY FOR LIFE WALK COLUMBUS SEPTEMBER 21, 2024 LOCATION Wolfe Park Shelterhouse SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 9:45 AM CONTACT Angela Sommer - 412-744-1066
2 events,
Energy for Life Walk – Western New York
Energy for Life Walk – Western New York
ENERGY FOR LIFE WALK WESTERN NY SEPTEMBER 22, 2024 LOCATION Cheektowaga Town Park 2600 Harlem Rd. Cheektowaga, NY 14225 SCHEDULE Site Opens: 1:30 PM Opening Ceremony: 2:30 PM CONTACT Monika Hancock - 412-225-9066
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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