Events
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Spouses of LHON – Affected Individuals
Are you the spouse (or similar) of someone affected by LHON? Would you like to network with others in a similar situation? Consider joining our event for Spouses of LHON-Affected Individuals […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Mindfulness with Mary Series (monthly)
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE
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LHON Assistive Technology
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive […]
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]
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Rare Disease Day
Visit rarediseaseday.org and share!
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
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LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact […]
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Volunteer Interest Meeting
Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising toward treatments -- you could be a change maker for patients and families impacted by #mitochondrialdisease. Register here: https://umdf.secure.nonprofitsoapbox.com/vol
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]