Events
-
-
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]
-
Rare Disease Day
Visit rarediseaseday.org and share!
-
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
-
-
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
-
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
-
LHON – Teens
This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Please contact Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://umdf.zoom.us/j/95371313871 Meeting ID: 953 7131 […]
-
Volunteer Interest Meeting
Learn about all the ways that YOU can Be the Energy for the #mito community. Wherever your talents or interests lie -- whether they be in support, advocacy, or fundraising […]
-
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
-
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
-
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
-
UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness and UMDF Mito Med Clinical Research Pavilion Update
We are combining this month's Ask the Mito Doc webcast with the Bench-to-Bedside and focusing on Clinical Trial Readiness. Join us to learn more.
-
Frontiers in Mitochondrial Medicine
Frontiers in Mitochondrial Medicine March 12, 2025 -- Icahn School of Medicine at Mount Sinai Click Here for Agenda and to Register The Department of Genetics and Genomic Sciences at the Icahn School of Medicine at Mount Sinai invites mitochondrial disease families to join them on March 12 - in-person or remotely -- for Frontiers in Mitochondrial […]