UMDF Connect
UMDF Updates Congress on Telehealth
Before the pandemic, telehealth coverage was limited in scope. However, the Centers for Medicare & Medicaid Services (CMS) and Congress expanded coverage to encourage broad adoption of telehealth for the duration of the public health emergency. Accordingly, we have seen an exponential increase in telehealth.
Ask The Mito Doc Webcast Series – COVID Vaccine Resources for Children and Adults
With the availability of COVID-19 vaccines for patients under the age of 18, here are some of our best resources on what all patients should consider, regardless of age, in getting the vaccine. As always, you should consult your medical team first on all of your...
Finalists Announced For 2021 accelerators Prize
Innovation, speed and agility are key to finding effective treatments for mitochondrial disease and accelerating the research could lead to a cure. That is why each year, the UMDF awards the accelerators prize to a promising Postdoctoral Fellow whose research project was selected by the UMDF Scientific and Medical Advisory Board as a finalist for the award.
Meet Mito Mom Jody Thompson
As we close the month of May, we recognize all the mito moms who seem to love harder, hug tighter, fight louder, remember forever, and hold every special moment closer to their hearts. Jody Thompson of Crooksville, Ohio
Ask The Mito Doc Webcast Series – Drug Development for Mitochondrial Disease
If you missed the May 2021 “Ask the Mito Doc” webcast,
Powerhouse Podcast Episode #4 – A Conversation with Dr. Ethan Perlstein, CEO of Perlara and cure Sherpa
Powerhouse Podcast Episode #4 UMDF President and CEO Brian Harman and Science and Alliance Officer Dr. Phil Yeske talk to the highly accomplished Dr. Ethan Perlstein, CEO of Perlara and cure Sherpa, about disrupting the research and drug development model to discover...
Ask The Mito Doc Webcast Series – Special Coronavirus Update
If you missed the February 2021 “Ask the Mito Doc” webcast,
Meet the Hardison Family
Hannah Hardison, 26, loves sitting on the couch in her Charlotte, NC, home, eating Teddy Grahams, drinking milk, and watching The Sound of Music, preferably with one of her three siblings. Even though her mitochondrial disease limits her physically, nothing keeps her from showing love for her brothers, Ned, 30, Shep, 27, and her sister, Ansley, 22.
Powerhouse Podcast Episode #3 – A Conversation Rob Bradner, an attorney at the D.C. law firm Holland & Knight.
Powerhouse Podcast Episode #3 UMDF President and CEO Brian Harman and Science and Alliance Officer Dr. Phil Yeske talk to Rob about his legislative advocacy work to support mito patients, the formation of the Congressional Mitochondrial Disease Caucus and what happens...
Ask The Mito Doc Webcast Series – Siblings and Mitochondrial Disease
If you missed the April 2021 “Ask the Mito Doc” webcast,