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  • TK2d Tuesday

    Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the […]

  • Energy for Life Walk – Kansas City

    Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MO

    ENERGY FOR LIFE WALK KANSAS CITY SEPTEMBER 14, 2024 LOCATION Lowenstein Park 1901 NW Lowenstein Dr Lee's Summit, MO 64081 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Deidra […]

  • Energy for Life Walk – National (Virtual)

    ENERGY FOR LIFE WALK NATIONAL SEPTEMBER 14 - 21, 2024 LOCATION A Venue of Your Choice! SCHEDULE A Start of Your Choice! CONTACT Monika Hancock - 412-225-9066 Angela Sommer - 412-539-9450

  • World Mitochondrial Disease Awareness Week

    Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease […]

  • LHON Awareness Day

    Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. Learn more at https://umdf.org/LHON.

  • Energy for Life Walk – Detroit

    Rotary Park Six Mile Road & Hubbard Street, Livonia, MI, United States

    ENERGY FOR LIFE WALK DETROIT SEPTEMBER 21, 2024 LOCATION Rotary Park - Pavilions 3 & 4 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066

  • Energy for Life Walk – Southern Wisconsin

    Fox Brook Park 2925 N Barker Rd, Brookfield, WI

    ENERGY FOR LIFE WALK SO. WISCONSIN SEPTEMBER 21, 2024 LOCATION Fox Brook Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066

  • Energy for Life Walk – Columbus

    Wolfe Park Shelter House 105 Park Drive, Columbus, Ohio

    ENERGY FOR LIFE WALK COLUMBUS SEPTEMBER 21, 2024 LOCATION Wolfe Park Shelterhouse SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 9:45 AM CONTACT Angela Sommer - 412-744-1066

  • Energy for Life Walk – Western New York

    Cheektowaga Town Park 2600 Harlem Rd, Cheektowaga, NY

    ENERGY FOR LIFE WALK WESTERN NY SEPTEMBER 22, 2024 LOCATION Cheektowaga Town Park 2600 Harlem Rd. Cheektowaga, NY 14225 SCHEDULE Site Opens: 1:30 PM Opening Ceremony: 2:30 PM CONTACT Monika Hancock - […]

  • Adult Virtual Support Meeting

    Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]

  • Energy for Life Walk – Seattle

    Warren G. Magnuson Park 7400 Sand Point Way NE, Seattle, WA

    ENERGY FOR LIFE WALK SEATTLE OCTOBER 6, 2024 LOCATION Warren G. Magnuson Park SCHEDULE Site Opens: 8:30 AM Opening Ceremony: 9:10 AM CONTACT Angela Sommer - 412-744-1066

  • California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • Energy for Life Walk – Orlando

    Blanchard Park 2451 Dean Road, Orlando, PA, United States

    ENERGY FOR LIFE WALK ORLANDO OCTOBER 12, 2024 LOCATION Blanchard Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066

  • LHON & Entrepreneurs

    LHON & Entrepreneurs Monday, October 21, 8:00 – 9:00 pm ET Being an Entrepreneur can be a rewarding employment path for some in the LHON community. This Zoom event is […]

  • Energy for Life Walk – Charlotte

    Pineville Lake Park 909 Lakeview Dr, Pineville, NC

    ENERGY FOR LIFE WALK CHARLOTTE OCTOBER 26, 2024 LOCATION Pineville Lake Park SCHEDULE Site Opens: 9:30 AM Opening Ceremony: 10:30 AM CONTACT Monika Hancock - 412-225-9066

  • Energy for Life Walk – San Antonio

    TMI Episcopal 20955 W. Tejas Trail, San Antonio, TX

    ENERGY FOR LIFE WALK SAN ANTONIO OCTOBER 26, 2024 LOCATION TMI Episcopal SCHEDULE Site Opens: 10:00 AM Opening Ceremony: 11:00 AM CONTACT Donna Basse Angela Sommer - 412-744-1066

  • California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]

  • California Virtual Support Group Meeting

    California Virtual Support Group Meeting

    UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]

  • Adult Virtual Support Meeting

    Adult Virtual Support Meeting

    Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]

  • LHON Live! Monthly Call

    LHON Live! Monthly Call

    NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

  • LHON DC-Area Connect

    LHON DC-Area Connect

    This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa […]

  • Northeast PA Support Meeting

    Northeast PA Virtual Greet Support Meeting

      Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

  • Mindfulness with Mary Series

    Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. Note the November & December dates are adjusted to the third Tuesday of the month due […]