Events
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TK2d Tuesday
Thymidine kinase 2 deficiency (TK2d) is a rare mitochondrial disease that impacts people around the world. TK2d Tuesday is the second Tuesday of September and is meant to celebrate the […]
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UMDF Ask the Mito Doc Webcast Series – Understanding Genetic Testing
Join us as we hear from Dr. Austin Larson and Dr. Eva Morava-Kozicz as they provide updates on Genetic Testing for Mitochondrial Disease Patients.
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Kansas City
Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MOENERGY FOR LIFE WALK KANSAS CITY SEPTEMBER 14, 2024 LOCATION Lowenstein Park 1901 NW Lowenstein Dr Lee's Summit, MO 64081 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Deidra […]
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Energy for Life Walk – National (Virtual)
ENERGY FOR LIFE WALK NATIONAL SEPTEMBER 14 - 21, 2024 LOCATION A Venue of Your Choice! SCHEDULE A Start of Your Choice! CONTACT Monika Hancock - 412-225-9066 Angela Sommer - 412-539-9450
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World Mitochondrial Disease Awareness Week
Energize the Fight – World Mitochondrial Disease Week 2024 We’re excited to unite with other mitochondrial disease-focused patient advocacy groups across the globe to spread awareness on World Mitochondrial Disease […]
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LHON Awareness Day
Leber hereditary optic neuropathy (LHON) is a rare inherited mitochondrial disorder. Its primary symptom is sudden, painless loss of central vision. Learn more at https://umdf.org/LHON.
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Detroit
Rotary Park Six Mile Road & Hubbard Street, Livonia, MI, United StatesENERGY FOR LIFE WALK DETROIT SEPTEMBER 21, 2024 LOCATION Rotary Park - Pavilions 3 & 4 SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
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Energy for Life Walk – Southern Wisconsin
Fox Brook Park 2925 N Barker Rd, Brookfield, WIENERGY FOR LIFE WALK SO. WISCONSIN SEPTEMBER 21, 2024 LOCATION Fox Brook Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
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Energy for Life Walk – Columbus
Wolfe Park Shelter House 105 Park Drive, Columbus, OhioENERGY FOR LIFE WALK COLUMBUS SEPTEMBER 21, 2024 LOCATION Wolfe Park Shelterhouse SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 9:45 AM CONTACT Angela Sommer - 412-744-1066
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Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […]
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Energy for Life Walk – Western New York
Cheektowaga Town Park 2600 Harlem Rd, Cheektowaga, NYENERGY FOR LIFE WALK WESTERN NY SEPTEMBER 22, 2024 LOCATION Cheektowaga Town Park 2600 Harlem Rd. Cheektowaga, NY 14225 SCHEDULE Site Opens: 1:30 PM Opening Ceremony: 2:30 PM CONTACT Monika Hancock - […]
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Seattle
Warren G. Magnuson Park 7400 Sand Point Way NE, Seattle, WAENERGY FOR LIFE WALK SEATTLE OCTOBER 6, 2024 LOCATION Warren G. Magnuson Park SCHEDULE Site Opens: 8:30 AM Opening Ceremony: 9:10 AM CONTACT Angela Sommer - 412-744-1066
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. […]
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Energy for Life Walk – Orlando
Blanchard Park 2451 Dean Road, Orlando, PA, United StatesENERGY FOR LIFE WALK ORLANDO OCTOBER 12, 2024 LOCATION Blanchard Park SCHEDULE Site Opens: 9:00 AM Opening Ceremony: 10:00 AM CONTACT Monika Hancock - 412-225-9066
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA […]
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LHON & Entrepreneurs
LHON & Entrepreneurs Monday, October 21, 8:00 – 9:00 pm ET Being an Entrepreneur can be a rewarding employment path for some in the LHON community. This Zoom event is […]
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UMDF Ask the Mito Doc Webcast Series – Connecting the Dots
Join us to hear perspectives from Dr. Andrea Gropman and Dr. Bharantendu Chandra as they share their experiences with common mito disease and ultra rare diseases.
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Energy for Life Walk – Charlotte
Pineville Lake Park 909 Lakeview Dr, Pineville, NCENERGY FOR LIFE WALK CHARLOTTE OCTOBER 26, 2024 LOCATION Pineville Lake Park SCHEDULE Site Opens: 9:30 AM Opening Ceremony: 10:30 AM CONTACT Monika Hancock - 412-225-9066
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Energy for Life Walk – San Antonio
TMI Episcopal 20955 W. Tejas Trail, San Antonio, TXENERGY FOR LIFE WALK SAN ANTONIO OCTOBER 26, 2024 LOCATION TMI Episcopal SCHEDULE Site Opens: 10:00 AM Opening Ceremony: 11:00 AM CONTACT Donna Basse Angela Sommer - 412-744-1066
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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LHON DC-Area Connect
This call is for those living in the DC-Area with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. Reach out to Lissa […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
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Mindfulness with Mary Series
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. Note the November & December dates are adjusted to the third Tuesday of the month due […]
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UMDF Ask the Mito Doc Webcast Series – Understanding POLG Disorders
Dr. William Copeland and Dr. Bruce Cohen will share information on POLG Disorders - providing a dual perspective on research and clinical practice. Please join us!
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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Run for Austin
Cove Island Park 1125 Cove Road, Stamford, CT, United StatesRun for Austin Saturday, November 23, 2024 - 9:00 A.M. In Person Race and Kick-Off Event Cove Island Park Stamford, CT Post-Race Event Join us for a post-race event at Third Place by Half Full Brewery 575 Pacific Street Stamford, CT 06902 10:30 am - 1:30 pm VIRTUAL Event Can't make it in person? Participate […]
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]
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UMDF Bench-to-Bedside Clinical Trials Update – Part 1
UMDF Bench-to-Bedside - Clinical Trials Update - Part 1 Moderators: Amel Karaa, MD and Philip Yeske, PhD Click Here to Register Natalie Yivgi Ohana, PhD - Minovia Therapeutics Robert Fischer, MD, PhD - OMEICOS Patrice Rioux, MD, PhD - Thiogenesis Therapeutics Vijay Modur, MD, PhD - BPGbio Inc. Sharon Hamm, Pharm D - Saol Therapeutics […]
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UMDF Ask the Mito Doc Webcast Series – Wrapping Up 2024 with the Mito Docs
Join us wrap up the year with at least four mitochondrial specialists - ask questions and hear about any important developments in mitochondrial medicine from each doctor's perspective!
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Mindfulness with Mary Series
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. Note the November & December dates are adjusted to the third Tuesday of the month due to holidays. For January 2025 - October 2025, we will typically host these sessions every fourth Tuesday from 12:00pm -1:30pm ET, You can register HERE
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LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month at 7:00pm EST. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation. […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Fourth Thursday of each month • 7:00pm – […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
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California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. The first Monday of each month• 10:00am – 11:00am Pacific Learn more & […]
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Mindfulness with Mary Series (monthly)
Please join us for a monthly Mindfulness series with UMDF Support Ambassador, Mary Canton. We will host these sessions every fourth Tuesday from 12:00pm -1:30pm ET. You can register HERE
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LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts Jessica Loomer and Andy […]