UMDF Connect
Ask The Mito Doc Webcast Series – Making the Most of the Holidays and Stress Research
If you missed the October 2020 ‘Ask the Mito Doc’ webcast, Making the Most of the Holidays, you can watch the replay here.
Beklow is a list of questions asked during the webcast and answered by our panel.
Energy for Life Virtual Teams
Our Energy for Life Walkathons have gone virtual. We are proud to welcome these amazing teams who have registered and are fundraising to help us fund our mission.
Meet The Hall Family
“Nina faces challenges every day. I wanted to honor Nina by pushing myself with something I love to do and the things she can’t.”
50 Ways to Fundraise
No event is too big or too small and every contribution powers the Roadmap to a Cure. Start a fundraising page online on our “Fundraise Your Way” DIY fundraising site or contact the UMDF Special Events Department to start your own fundraiser today!
Meet Gavin
“I can’t even tell you how often we were in the hospital in those early years,” said Nikki about her son Gavin, who was diagnosed with mitochondrial disease as a toddler. The disease rapidly progressed, causing chaos in Gavin’s small body. At age five, he received a...
COVID-19 and Isolation for our Adult Patient Community
The following tips were provided by Gail Wehling and Joy Krumdiack, UMDF Ambassadors.
Meet Andy
Andy Marks is a skier, a boxer and a bowler. He also enjoys movies, plays backgammon and is a stand-up comedian. His activities don’t seem too far out of the norm for a 31 year old. The difference is that Andy is blind. Andy is living with Leber’s hereditary optic neuropathy (LHON).
Meet Ryan
UMDF’s 2020 Energy Award winner is Ryan Eberly from Gordonville, PA. Ryan first learned about UMDF shortly after he was diagnosed eight years ago with CPEO Plus with mitochondrial myopathy which was caused by a POLG mutation.
Meet Jagger
“When I went to my first symposium, it was a really big deal, because I realized we were not alone.”
Meet Jeremiah
Like many parents, Aneesa’s introduction to mitochondrial disease was jarring. After months of jumping from specialist to specialist who ran test after test searching for answers around the weakness in her then seven-month-old son, Jeremiah, she got a dreaded answer....