UMDF Connect
Ask the Mito Doc – April 2026
Ask the Mito Doc - April 2026: Genetics 101 All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Speakers: · Sarah Chang, PhD, Medical Strategy Lead, UCB · Cristy...
April 2026 Newsletter: 30 Years of Progress
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. 30 Years of Progress Fueled By You Three decades ago, the world looked very different for mitochondrial disease patients and their families. Little was known about...
Saol Therapeutics Provides Update from Type C Meeting with FDA regarding DCA
Ask the Mito Doc – March 2026
Ask the Mito Doc - March 2026: Updates on TK2d Therapy Kygevvi All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Speakers: · Sarah Chang, PhD, Medical Strategy Lead,...
UMDF Co-Signs Letter to CMS Laying Out How Proposed ACA Changes Could Affect Existing Medical Nutrition Coverage
March 2026 Newsletter: Mito Med Conference, Volunteer Awards, Advocacy
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup. Meet Us At MitoMed 2026 in Orlando, FL Registration for the Mitochondrial Medicine 2026 conference in Orlando, FL from June 17-20 is now open! This year, we’ll be at the...
UMDF, LHON Collective Issue Statement on the FDA’s Decision Not to Approve Idebenone
UMDF is disappointed by the U.S. Food and Drug Administration’s (FDA) decision not to approve idebenone for Leber Hereditary Optic Neuropathy (LHON), a rare mitochondrial disease that causes sudden and often irreversible vision loss. “Far too many patients continue to...
Ask the Mito Doc – February 2026
Ask the Mito Doc - February 2026: Understanding MELAS All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Topic: Understanding MELAS and Current Treatments/Therapies...
February 2026 Newsletter: Rare Disease Awareness, Advocacy Updates, and More
Signup to receive the UMDF newsletter in your email monthly at umdf.org/newsletter-signup.February is National Heart Month and Rare Disease Month For the mitochondrial disease community, heart health is part of everyday health. Join us throughout the month as we...
Apply for a UMDF Research Grant
UMDF awards grants to researchers and clinicians focused on advancing science in the field of mitochondrial disease.