UMDF Connect
Back to School Resources for Mito Families
With kids returning from summer break, it’s the perfect time to think about resources for your mito student. Education advocate and UMDF Ambassador Melissa Knox has prepared a number of resources to help parents of students with mitochondrial disease get the most from...
Video Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Casimir/Emmes
Video Assessment for PMM and PolG patients This study, “Development of the Mitochondrial Video Assessment (MVA) as an Outcome Measure for the Evaluation of Patients with Mitochondrial Myopathies,” hopes to develop sensitive, reliable outcome measures that will provide...
UMDF Celebrates the 2023 Vanguard Award Winner Robert Naviaux, MD, PhD
Above: Richard Haas, MD, presents Robert Naviaux, MD, PhD, with the 2023 Vanguard Award. The UMDF Vanguard Award is presented to a scientist or physician in honor of his or her lifetime contributions to the field of mitochondrial medicine or research. The recipient is...
Preparing for Mitochondrial Medicine 2023: Schedules, App, Safety & More
Download the Mitochondrial Medicine App Now The official Mitochondrial Medicine Symposium app for 2023 is now available to all registrants via mobile devices and desktop. You’ll find the app has a lot of great features, including full programming schedules, a...
Ask the Mito Doc – July 2023; Q&A: Ask the Mito Doc Panel during UMDF Mitochondrial Medicine 2023
Ask the Mito Doc July 2023 Ask the Mito Doc Panel during UMDF Mitochondrial Medicine 2023 Clinicians: Eva Morava-Kozicz, MD, PhD, Mayo Clinic Austin Larson, MD, Childrens Hospital of Colorado Russell Saneto, DO, PhD, Seattle Children’s Hospital Jaya Ganesh, MD , Icahn...
Ask the Mito Doc – May 2023; Q&A: Special Session for the Newly Diagnosed
Ask the Mito Doc May 2023 Special Session for the Newly Diagnosed Clinicians: Rebecca Ganetsky, MD The Children’s Hospital of Philadelphia Colleen Clarke Muraresku, MS, LCGC The Children’s Hospital of Philadelphia Sumit Parikh, MD Cleveland Clinic Patricia...
Advocacy Update – May 2023: What Does the End of the Public Health Emergency Mean for Medicaid?
UMDF Washington Update – May 25, 2023 Debt Limit Negotiations Continue House Speaker Kevin McCarthy (R-Calif.) met with President Joe Biden on May 22, 2023, and had a "productive discussion," but they have not yet reached a deal on raising the U.S. debt ceiling....
Updated COVID-19 Recommendations from UMDF’s Science & Medical Advisory Board – May 2023
COVID-19 Update - Posted May 23, 2023 Although the COVID-19 pandemic is declared over, the COVID-19 virus is still causing illness and death in the United States and around the world. We now enter the endemic phase, which means that it will be present in the...
Research Update from 2013 UMDF Grant Recipient James Stewart, PhD
Funding nearly $15 million in research – research that is often underfunded but critical to the diagnosis and treatment of patients with mitochondrial disease – that’s the legacy of the UMDF research grant program. James Stewart, PhD received a UMDF research grant in...
Ask the Mito Doc – April 2023; Q&A: Endocrine Complications of Mitochondrial Disease
Ask the Mito Doc April 2023 Endocrine Complications of Mitochondrial Disease Clinician: Shana McCormack, MD, MTR, Children’s Hospital of Philadelphia Watch the video: https://youtu.be/L-ck5ddfky4 Q: Do any of the following supplements help to regulate violent swings...