UMDF Connect
A Special Message from New UMDF President & CEO Kristen Clifford
To the mitochondrial disease community, As I wrap up my first full week as United Mitochondrial Disease Foundation (UMDF) President and Chief Executive Officer, I wanted to take a moment to reach out. In my brief time here, I have already had the privilege...
Ask the Mito Doc – January 2025; Q&A
Ask the Mito Doc - January 2025 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.A Comprehensive Vision: Understanding Chronic Progressive External...
United Mitochondrial Disease Foundation Names Kristen Clifford New President & CEO
The United Mitochondrial Disease Foundation (UMDF) Board of Trustees has named Kristen Clifford the organization’s next President and Chief Executive Officer, effective January 13, 2025. Kristen comes to UMDF with decades of non-profit leadership experience, including...
January 2025 Newsletter: Mito Med 2025 News, Advocacy Update, CPEO & MELAS Webcasts, and More
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Ask the Mito Doc – December 2024; Q&A
Ask the Mito Doc - December 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Wrapping Up 2024 with the Mito DocsClinicians: Amy Goldstein, MD,...
December 2024 Newsletter: Mito Fund Investment, Mito Med 2025 News, Clinical Trial Updates, and More
Sign-up to receive the UMDF newsletter via email at Newsletter Signup. The Mito Fund Announces Investment in Khondrion UMDF’s venture philanthropy arm, The Mito Fund, recently announced an investment in Khondrion, a Netherlands-based clinical stage...
UMDF Signs On to Letter to Congress Supporting Accelerating Kids’ Access to Care Act
Ask the Mito Doc – November 2024; Q&A
Ask the Mito Doc - November 2024 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Understanding POLG DisordersUnderstanding POLG Disorders: A Dual...
The Mito Fund Announces Investment in Khondrion to Support Development of One of the Most Advanced Drug Candidates for Primary Mitochondrial Disease
The United Mitochondrial Disease Foundation’s (UMDF) venture philanthropy arm, The Mito Fund, has invested in Khondrion, a Netherlands-based clinical stage biopharmaceutical company discovering and developing therapies targeting primary mitochondrial disease (PMD)....
UMDF November Advocacy Update: What Does a Second Trump Administration Mean for the Mito Community?
With the recent election results, we’ve been getting some inquiries about the impact of a second Trump Administration on mitochondrial disease patients and families. And the truth is, it’s too early to know – but our governmental relations team at Holland & Knight...