UMDF Connect
Ask the Mito Doc – March 2025; Q&A
Ask the Mito Doc - March 2025 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Ask the Mito Doc - March 2025: Clinical Trial Readiness & Clinical...
Advocacy Action: Ask Congress to Oppose 57% Cut to Congressionally Directed Medical Research Programs
Updated 3/12/25, 11amLast night, the House approved the continuing resolution -- including the 57% CDMRP cut -- to fund the government through September 30 with a final vote of 217-213. The measure still needs to pass the Senate, however, where it will need bipartisan...
Ask the Mito Doc – February 2025; Q&A
Ask the Mito Doc - February 2025 Q&A All answers today are based on personal experience of the participants. As always, please consult your personal physician prior to taking any action.Ask the Mito Doc - February 2025: Comprehensive Care in Kearns-Sayre and...
UMDF and The Mito Foundation Announce Research Grant Partnership
UMDF awards grants to researchers and clinicians focused on advancing science in the field of mitochondrial disease.
A Special Message from New UMDF President & CEO Kristen Clifford
To the mitochondrial disease community, As I wrap up my first full week as United Mitochondrial Disease Foundation (UMDF) President and Chief Executive Officer, I wanted to take a moment to reach out. In my brief time here, I have already had the privilege...
A Message from UMDF on the Passing of Prince Frederik
We at UMDF wish to share our deepest condolences with the family of Prince Frederik, who passed away at age 22 from the mitochondrial disease POLG earlier this month. As the founder of the POLG Foundation, Frederik's journey was on full display to the world. Rather...
March 2025 Newsletter: New Clinical Trials Finder, More FDA Announcements, Mito Masterclass, and more
February 2025 Newsletter: More Research Grants Coming, Therapeutic Pipeline Movement, Mito Med Registration, and More
Sign-up to receive the UMDF newsletter via email at Newsletter Signup. UMDF and The Mito Foundation Announce Research Grant Partnership Two of the world’s largest mitochondrial disease patient advocacy groups are collaborating to double their research impact this...
UMDF Cosigns Letter to New Administration Outlining Rare Disease Priorities
Apply for a UMDF Research Grant
UMDF awards grants to researchers and clinicians focused on advancing science in the field of mitochondrial disease.